文献类型：期刊文献

英文题名：'Fear, uncertain, tired…...' psychological distress among pulmonary hypertension patients: a qualitative interview study

作者：Zhang, Juxia[1];Zhang, Yiyin[2];Yin, Yuhuan[2];Feng, Yuping[2];Zhang, Rong[2];Meng, Hongyan[2];Wang, Jing[2]

第一作者：Zhang, Juxia

通信作者：Zhang, JX[1]

机构：[1]Gansu Prov Hosp, Clin Educ Dept, Lanzhou 730000, Gansu, Peoples R China;[2]Gansu Univ Chinese Med, Sch Nursing, Lanzhou 730000, Gansu, Peoples R China

第一机构：Gansu Prov Hosp, Clin Educ Dept, Lanzhou 730000, Gansu, Peoples R China

通信机构：[1]corresponding author), Gansu Prov Hosp, Clin Educ Dept, Lanzhou 730000, Gansu, Peoples R China.

年份：2024

卷号：24

期号：1

外文期刊名：BMC PSYCHIATRY

收录：;Scopus(收录号：2-s2.0-85184427386);WOS:【SCI-EXPANDED(收录号:WOS:001158142500002)】；

基金：The authors would like to thank all participants in this study.

语种：英文

外文关键词：Psychological distress; Pulmonary hypertension; Qualitative study

摘要：BackgroundPatient-centered health care for patients with pulmonary hypertension (PH) is important and requires an understanding of patient experiences. However, there is a lack of approaches to examine what's the effects and how the disease impact patients' psychological well-beings.MethodsWe conducted qualitative interviews with PH patient representatives to understand patient psychological experiences and inform patient-centered research and care. Participants were chosen from a tertiary hospital located in northwest China. 20 patients with PH who be treated at the hospital (13 participants were women, aged 18-74 years) were strategically selected and individually interviewed. We used qualitative analysis to identify themes relating to existential psychological distress that would clarify the nature of such concerns.ResultsWe found that patients experience tremendous psychological distress throughout the treatment process. Four categories that describe patients' psychological experiences emerged: burden of PH treatment, fear and uncertainty about the disease, frustration in social and family role, and lack of recognition of the condition.ConclusionsExistential concerns are salient in PH and involve the experience of loss and disruptions to the sense of self and relationships. Healthcare practitioners must work more in collaboration to detect patients' need for support and to develop the patient's own skills to manage daily life. The PH teams should tailor interventions to provide emotional, informational and instrumental support and guidance to patients.